Seizures uncontrolled and causing major issues with day to day functioning. The nights are getting worse. Neither The Knight nor myself sleeps hardly at all. He has to work, so staying up with me, keeping watch, isn’t working out very well.
Am I being selfish by keeping up the fight? It feels like I am. Still, I am so desperate to have more time that I do it. Of course we knew the score. We’ve been lucky to have fought it this long, right? Maybe it’s time for hospice after all.
Really, I can’t take another long night doing nothing but having seizures and losing hope.
10 Responses
Luke says...
there isn’t much i can say to this post, other than….I love you & and you’re in my thoughts and prayers daily!
mina says...
Im sorry.. what did you say? You are being SELFISH by keeping your hope and fighting the fight? *smack* get that awful thought out of your head! That is NOT being selfish! That is being determined to live another day! Stop thinking that way. Now come over here and I’ll give you that *smack* you really enjoy. tee hee
Maria says...
You’re not being selfish at all. Keep fighting.
*hugs*
gilette says...
Awww, Sweetie…this is a tough journey for both of you…and selfish is good…it’s a good thing. Your self is hurting and needs you to recognize its needs. My arms are around you…Blessings.
Terry says...
That’s the exhaustion and frustration talking. By all means, at this time, be selfish. Be very selfish. Your Knight and your children are entitled to as much of you as they can have.
Fight. Fight. Fight.
BookChick says...
I have just been reading your posts for a little while and I am sorry to hear you are hurting. Please know you are in my thoughts and keep us posted as long as you can. Even we strangers care
M
His bliss says...
Oh god honey, I am so sorry to hear this. I’m sending you back lots of love and hugs.
bliss
xoxox
Rob says...
Do what you need to do for yourself.
I don’t want you to give up, but that’s me being selfish.
I’ve never met you in real life. But from your words, I’ve come to know you as a beautiful human being. You are someone I call friend and whom I love.
You will be in our prayers.
Sulpicia says...
Try to stay strong… But above all… Do not feel selfish. A body in pain need super love and care.
Neska says...
Checkin’ in on you, every day. Peace and love to you and yours.
N