I promised to update as I was able, so here I am. No doubt you miss the sex stories and the erotica, but there’s not a whole lot of that going on right now. However, you can always check the sidebar under Writing and find the oldies but the goodies.

After seeing the doctor yesterday the news is less than good. I told The Knight, of course, but I couldn’t tell Mama. So, I gave her the basics but the rest will have to wait until the next time I see her in person.

The plan of action?

To get as much done this month- as much chemo and radiation as possible. At the end of the month if there is not a significant improvement/reduction then that’s it. The doctor will send me home on hospice with comfort measures only.

He did tell me, of course. This time last year we knew that this was our last ditch effort. I was told that I probably wouldn’t see my thirty-first birthday, but it’s fast approaching. I keep thinking that maybe, just maybe, they will be wrong. Maybe March will be the month to turn it all around, the month that it all falls into place and miracles appear out of thin air. They warned me, so I knew that this was the possibility but I didn’t want to believe them.

I write here because this place is mine. This is my safe haven to say all the things that normally I hold inside. My body hates sitting here in the chair I fell in love with that The Knight bought for me because he saw how much I loved it, at the desk that he bought and assembled for me because it was girly and my favorite shade of white. The desk that houses cards from friends and family, pictures drawn by my babies, and love letters from my husband. The desk that has seen countless hours of writing and video game grinds (God how I miss World of Warcraft!) with my husband.

My husband.

Remember when I never thought it would happen? Now my last name is the same as his. He smiles and cries when he calls me his beautiful wife. He calls me beautiful with my hair shorter than his and my body shutting down! I always said the man was crazy, so I guess he keeps on proving it day after day.

We talked last night about the news from the doctor. The plan is to hold out hope for this month, to keep on believing that I’ll be the lucky one. (I think he needs it more than I do at this point, so I will do it for him.) When the month is over he will take a leave of absence from work to be with me. Then we will talk to the babies and make plans for the weeks that they say I will have left.

It all seems so surreal. All around me life goes on and I feel stuck, rooted in this place. Caught somewhere between life and death where the view never changes. It’s like watching a movie that someone else has made about me and my life.

I’m tired now. I’m sorry if you came here looking for a wank or voyeuristic fulfillment. None of that to be found here lately. If you’re still speaking to me, drop me a line. Tell me what’s going on your world.

Email this post

Back to the doctor today, so not a lot of time to write. I don’t know when I will update again.

Though they said it would probably happen, I didn’t expect this. I didn’t expect to feel the pain so intensely. I didn’t expect to go downhill as quickly as I seem to be. Every day lately seems to bring with is something new, something else that I have to fight against. But I fight because I want to live. I fight because I want to grow old with my Knight. I fight because I want to see my babies grow up.

I’ve fallen down the stairs more. I can hardly see and there are days that holding on to even a cup of tea is almost impossible. The bleeding never stops from the front or the back and the pain is so intense that it makes me prefer labor and childbirth without drugs to this. But that’s not the worst.

The worst is the waiting. The knowledge of the dying process with a diagnosis like this. Will today be the day? How about tomorrow? The waiting and the fear of falling asleep and never waking up…those are the hardest things.

I am so happy. I am so incredibly loved at this moment in my life. All I want is to scream and stomp my feet while I cry out that this isn’t fair. It’s not supposed to happen this way. My life is beautiful, maybe even more meaningful now than it ever has been. Yet here I am, fighting this horrible illness that will take it all away. It’s hard to face the facts when you’re so sure that you’ll be the one time they’re wrong, that your life is worth a miracle.

It’s like dying in the sun.

When I’m able I will update, even if it’s short or just a video. Thank you for reading and for the thoughts and prayers. I’ll take them with me everywhere.

Email this post